Monday, June 30, 2014

Worries

By now most of you have probably figured out I'm a worrier.  Even in the best situations I can/will find something to worry about.  It's funny because when it comes to friends and family I am a really positive person.  Always being optimistic and supportive, so sure things will work out just fine.  But that's not the case when it comes to my personal "stuff".  I've been wondering lately if I've always been that way or if it's just another way that infertility has changed me.  Whatever the cause, I just can't seem to find my positivity when it comes to this fight.

I stopped taking the PIO shots and the estrogen/progesterone suppositories 8 days ago.  Still no signs of starting my period.  This leads me to believe that I probably have another cyst.  I spoke to Nurse Jenny this morning and she said that if I haven't started by Wed. when we have our WTF appointment that Dr. H. will do an ultrasound during that appointment to check for cysts.  I basically need to start my period by July 18th in order to start BC pills for Aug. cycle.  Why do I feel like that's never going to happen?  Typically getting pushed one month wouldn't be such a big deal.  But our fall is crazy.  I'm in a wedding in a different state at the end of Sept. which is most likely when we would be looking at transfer for Sept. cycle.  Same deal for Oct. - my husband and I are BOTH in a wedding that falls right when we would be looking at retrieval/transfer.  If we were just attending the weddings I'd suck it up and just plan on skipping but that's not really an option when I'm a part of it.  My clinic takes every November off and does not cycle that month so then we'd be looking at Dec.  The thought of doing nothing but waiting until Dec. while my eggs only grow more rotten every day makes me want to jump off a bridge.

Then there's the fact that Dr. H could suggest some sort of surgery or procedure before we move forward.  If that's the case we would also be looking at a delay.  I mean right now I'm only guessing at what his recommended paths will be based on other conversations we've had and the results of the three cycles we've done.  I could be totally off base and he could throw something at us that I've never even thought of.  The worries are endless if I let my mind wander.

There's nothing to do but wait (and worry) until Wednesday actually gets here.

Wednesday, June 25, 2014

Be Patient

Thank you so much for all of the kind comments and emails.  I'm very sad to report that my beta was negative.  I tested on 9dp5dt and then again the morning of the beta (10dp5dt) and both home tests were negative.  I knew in my heart before I even saw the results that it didn't work.

I'm doing okay.  I mostly feel numb.  Next month is our 1 year anniversary of our infertility diagnosis.  When we first discovered that there were issues I remember wishing I could just fast forward to a year from now when this would all be behind us.  But here we are - 2 Fresh IVF cycles, one FET, 3 transfers, and 5 beautiful embryos lost.  I long ago lost track of the number of pills and injections I've given myself.  The blood, bruises, hot flashes, headaches, and hormonal highs and lows no longer phase me.  What once seemed like the biggest, most overwhelming experience of my life has become routine.  And here we sit.  Still childless, still heart broken, bleeding money and quickly losing hope.

This most recent disappointment has caused to me really question if having a family is in the cards for us.  I've always been so sure in my heart that I was meant to be a mother.  It's what I've always wanted, what I've always dreamed of.  Even when dealing with the shock and devastation of an infertility diagnosis I still felt confident that I would have a baby.  It just was going to take a little longer than we thought.  And believe me I know there's so many of you who have been fighting this battle much longer than us.  I guess I was just naive enough to think we'd be one of the lucky ones who got out quickly.  It's not looking like that's the case.

We scheduled our WTF appointment for next week.  I think that Dr. H. will lay out two paths for us.  1.  Try a 3rd fresh cycle at the very highest medicated protocol (we were on the 2nd highest last time) and include genetic testing (CCS) of the embryos.  2.  Donor Eggs.

My husband and I have spent a great deal of time over the weekend discussing this.  He just isn't ready to make the jump to donor eggs.  He really feels like we saw improved results (as far as number of eggs retrieved and number of viable embryos) with our last fresh cycle and if we try again on the most aggressive protocol we could possibly even get a couple more eggs/embryos then last time.  He also thinks the genetic testing will give us some answers that will make things more clear.  Which I guess I see his point.  If the genetic results come back and none of our embryos are normal then that's a pretty good indicator that we should move on.  But if we have several that are normal then it would confirm that I have more of an egg quantity problems vs. an egg quality problem.

My biggest thing is I just don't want to waste any more time.  I'm sure part of it is that I turn 34 in 2 weeks.  It just seems like with each disappointment and failure all I can think about is the fact that time is quickly running out.

But I am going to do my best to stay hopeful and positive.  I have a lot to be grateful in my life and I need to remember that.



Friday, June 20, 2014

Are you there?

This morning as I kissed my husband goodbye I told him that I loved him and if Frosty was still in there he loved him too.  This 2ww is passing - we are over the halfway mark - and I guess I'm surviving.  I haven't been in the best of moods but I don't feel like I've given up hope either.  All I really feel like is a crazy person.  On one hand I have what I think of as "hopeful" symptoms and on the other it seems the symptoms I do have could just be chalked up to the drugs and what I'm lacking is a tell tale sign that this transfer was not successful.  All of the over-thinking, analyzing, and ups and downs are enough to drive the most stable person crazy.  But I'm holding on.

I definitely had some cramping during the implantation time - but no implantation bleeding (I did notice this with my last transfer that ended in an early miscarriage).  I now have more of what I'd call a "heavy" feeling in my lower pelvic area.  I'm having some lower back pain and just yesterday I felt like I got lightheaded and/or nauseous a couple times.  However the thing that's really throwing me off is my boobs are not sore whatsoever.  Which is crazy considering the amount of progesterone I'm on, and seems like a dead giveaway to me that this did not work.  Yesterday I did feel like *maybe* my nipples were a little more sensitive but honestly all of this could just be straight up in my head.

For those of you who have been through this I know you understand what a complete mind f*ck this all is (Sorry for the language Mom).  By Beta time I am just ready to KNOW, even if the news is bad.  I can't stand the waiting and wondering any longer.  Just a few more days.  I've been thinking about testing at home just so I can be more prepared.  As of right now my plan is to test at home the morning before beta.  I mean the worse that can happen is I'm bummed out and it turns out to be positive which would be the best news ever.  Right now I"m totally in the zone where some people get positives and some get negatives only to get a positive HPT within the next couple days.  I really don't need to add to my insanity so I'm staying away from that.

So to quote my friend Amanda - Ever Onward.  One way or another we'll have some answers in a few days.  If you are in there little one I hope you can feel how much we love you, how badly we want this.  I'm praying for you every day and you are in my mind and heart.


Monday, June 16, 2014

The Day that *Could* Change Everything

Well we did it!  One more transfer under our belt.  We were able to transfer our one little embryo that we have left.  Our fighter.  Our hope.  Our baby.



I was a complete nervous wreck the morning of transfer.  My appointment wasn't until the afternoon and I knew they were beginning the thaw that morning.  Every time my phone made a noise D and I almost threw up, certain it was the clinic calling to tell us that he didn't survive.  But our tough little guy came through again with no issues.  We woke up early on transfer day and went for a run together, then out to breakfast.  It was so nice to have some time together just the two of us.  We made the decision not to tell anyone the exact time of our transfer so we could pass along information when we were ready on our own terms (in case of bad news).  An hour before our appointment I started drinking my water and then we headed to the clinic.  We were the last appointment of the day and as soon as I got there they gave me some Valium to help with the anxiety (thank you Jesus) and I immediately asked how our little guy was doing.  They assured me that the thaw went fine and Dr. H. would be in to talk to us before transfer.  I got undressed and laid on the table with D sitting next to me.  Of course my amazing staff was in and out prepping me and getting us ready all the while easing our anxiety and showering us with love and positivity.  It was a special day at my clinic as the head of the center who is based in a different state was in town and there for my transfer.  I was a little nervous about having a new player in the mix but figured another set of eyes and expert opinion couldn't hurt.  Finally Dr. H. came in with the above picture of our little guy and explained to us that on Day 5 they want to see the cells evenly sized with a mass in the middle and they want it to be clear when they look at it through the microscope.  He said that Frosty had all of those characteristics which was good news.  He patted my knee in his fatherly way and said he'd be back shortly to begin.  D and I sat together studying the picture of the life we created (well with a whole lot of help).  A piece of him and a piece of me.  Tears stung my eyes as I prayed over the picture of our sweet little embaby and my heart filled with hope.  My nurses came in and checked my bladder to make sure it was full enough and we were good to go.  Before I knew it the room was full of people bustling around.  Jo my faithful, kind nurse was there holding the ultrasound wand on my stomach to that Dr. H could see my uterus.  She squeezed my hand and offered a reassuring smile.  Nurse Jenny - my life line, was behind Dr. H. to assist if he needed anything.  Dr. H walked in with the head doctor who introduced himself to us and shook D's hand telling us how excited he was to be present today.  As Dr. H. assumed the position they talked us through everything.  We saw the catheter come onto the ultrasound screen and heard the Embryologist in the lab open the connecting window and asked us to confirm our names and that we were transferring one Day 5 blastocyst.  D and I answered yes together and then Frosty was there in the room. Once I saw her pass the embryo through the window I immediately relaxed.  We were reunited, together again.  And regardless of if this transfer is successful the life that we had all worked so hard to create was about to be placed where it belonged - inside me.  Dr. H. walked us through the steps telling us to watch the screen.  We saw the embryo come up through the catheter and then the magical moment where they released it into my uterus.  While I wasn't as emotional as my first transfer, and not as overwhelmed as I was in my second I simply felt at peace.  This is what I had been waiting for.  Finally he was home.

The catheter was checked in the lab under the microscope to confirm that the embryo was released and they snapped this beautiful picture on the u/s machine.




The rest of the appointment was pretty uneventful.  I laid on the table for 30 min. trying not to pee everywhere and then we headed home.   I slept most of the rest of the afternoon and basically was on bed rest the next day as well.  We watched lots of Netflix and movies and just relaxed.

So...now the dreaded 2ww.  Is there anything more hard?  I hate how helpless I feel during this week.  I take my meds and do my shots and pray that this is it.  I wish there was more I could do for this child of ours that I love with all my heart.

I got to thinking on Father's Day yesterday, which was another hard day for us, that this is the 5th embryo we've transferred.  It seems so....unfair that we've lost 4 of our babies already.  I know there's many people in the world that will argue with me but each of those embryos we implanted was a baby to me.  A piece of myself and the man that I love.  A chance.  A hope.  At this point of our infertility journey it's all I have and I cherish them all.  I hope this last one, our fighter, our tough little one is strong enough to continue to fight.  I pray that 9 months from now I can hold him or her in my arms and my tears will finally be tears of joy and gratitude.

Wednesday, June 11, 2014

Pain in the......

I'm going to take a moment to vent and be a whinny IVF patient.  I try so hard not to complain about this process that is giving me a chance to have a baby of my own when nature most likely wouldn't let that happen.  I feel bad complaining and being ungrateful for medicine and science that gives us a fighting chance.  And I know that FET cycles are not as intense as fresh IVF cycles.  I know all of this.  But some days you just gotta bitch.

My FET protocol was Lupron for supression with E2V (delestrogen) IM (inter muscular) injections every third day.  Now that we are getting closer to transfer I've started the dreaded PIO (progesterone in oil) shots and we've increased the E2V.  I'm doing 2cc's (100mg) of PIO every night.  This.  Is.  A.  Lot.  More than I've ever done in the past.  In addition I'm doing .4ml's of E2V every third night.  Last night was a night I had to do both IM shots.  I'm not proud to say I didn't handle this well and basically cried through the whole thing.  My bottom hurts when I walk, hurts when I sit, hurts when simply standing.  In addition I've been battling a non stop headache since this weekend.  Please, don't get me wrong.  If it meant I get a baby I would do both shots every day for the rest of my life.  But man, is it hard sometimes.

Ok so that's enough of the whining and complaining.  That being said we are one day closer to transfer.  We are getting there - making progress.  And as my best friend told me this morning every shot is one step closer to transfer and giving Frosty a home.  I pray so hard that this works.  That this will be it for us.  However the road to bringing home a healthy baby is long and full of potholes.  I will be SO SO grateful IF we get a positive beta.  But I will be plagued with worry and fear waiting to see it increase.  I know I won't be able to stop thinking about what happened last time.  I can't even picture myself going in for the first ultrasound after experiencing it last time with no heartbeat.  The fear is like a living, breathing thing inside me.  Then I begin to play out "which is worse".  Is it worse to get a negative beta from the get go?  Or to become pregnant only to miscarry.  I'm not sure there's a right answer there.  Both are terrible, horrible.  I don't want to go through either option.  I just want to get pregnant and stay pregnant and 9 months later bring home a healthy baby.  Which sometimes feels completely impossible.

But thanks to my support system I have faith.  I have people who are praying for us and helping me to be positive even when I feel hopeless.  For that I am eternally grateful.  I know it only takes one.  I have spent this week obsessing over some of your blogs where you transferred just 1 embryo and either have your sweet child home with you or are well in to your 2nd or 3rd trimester.  I envision that being us.  I hope.  I pray.  I do these stupid shots and take all of the meds and know that ultimately this is all in God's hands.  I trust in his plan for us even when I don't understand it.  I have FAITH.

Monday, June 9, 2014

Check!

Does anyone else sometimes feel like this journey is full of small boxes that you check off?  It seems that's how I picture things whenever I start a new cycle. So much has to go right before you even get to transfer.  Some of them are small steps and some larger but they all have to be completed and you have to "pass" to continue to move forward.  On Friday I had my blood work to check my hormone levels and my U/S to check my lining.  I was nervous because I've been having some strong period like cramps since the scratch and was nervous my lining wasn't going to be good.  It came in at a 10 which they said was great so that was a relief.  One more box checked.  I'm continuing with the delestrogen shots every third day and my dose has increased slightly.  In addition last night I started the PIO shots.  I really did not miss those.  Even the E2V that I've been doing that is an IM shot in the butt isn't as bad as the PIO since it's not as thick or as much.  But it's all part of the process and obviously worth it in the end.  

So as we inch closer to transfer I've been battling a lot of fears.  The biggest one is how our little "Frosty" will thaw.  This is my first FET and technically IVF try #3 for us.  We've done two fresh cycles and had poor results with both.  We only had 1 embryo to transfer the first time and I got a negative beta.  The second cycle we had 4 embryos.  1 which was pretty poor quality due to fragmentation so we transferred it along with 2 others that were fairly good quality.  I did receive positive betas that continued to climb but at the 7 week ultrasound there was no heartbeat and it showed development had stopped most likely around 6 weeks.  The 1 embryo that we froze from our 2nd fresh cycle was actually at 12 cells at day 3.  Which is further along than they are supposed to be.  Our embryologist explained that could be a good thing or a bad thing.  Sometime when embryos are ahead they just continue to divide too many times until they arrest.  This little guy held on and made to a 5 day blastocyt.  We've only transferred Day 3 embryos in the past so this is another new thing for us that does bring me some hope.  

I've been extra emotional the last week as we draw closer to transfer.  I think it's just because so much is riding on this try.  It's our very last embryo so if this cycle fails we have a lot of hard decisions ahead of us.  Not to mention more waiting and more money.  I'm just so ready for this to be over. The hardest part for me is the unknown.  If someone told me that I'd have to do X amount of IVF cycles but in 2 years we'd have a baby I could put my nose to the grindstone and pound it out.  Would the physical and emotional pain still be hard to bear?  Of course - but knowing the end result was coming would give me the strength to push through.  Obviously I don't have that luxury and it's so hard to continue to fight this battle when you have no idea if you'll ever come through the other side.  

I got hit really hard this week by a pregnancy announcement on FB.  A high school girlfriend of mine that got married in February announced she is pregnant and due in Dec.  Which basically means they tried for like one month.  The fact that we are the same age (33 very quickly approaching 34) seemed to make it extra hard for me.  Of course I'm happy for her but once again I'm sad for me.  I can't help but wonder when our time will be and if it's ever coming.  I pray that it's this cycle.  I try to focus on having positive thoughts and faith that this is it for us.  The start of our family and a healthy pregnancy that will bring us a take home baby.  But with all the odds stacked against us it's hard not to worry about if this cycle fails and where we go next. However I'm going to put all those negative thoughts aside and just work on checking off my boxes.   



Thursday, June 5, 2014

Scratch

It's been a crazy week for me, as I've been traveling for work but I wanted to send out a quick update as I'm feeling pretty anxious this morning.  I had my "scratch" on Monday morning.  It was as unpleasant as it sounds.  Basically Dr. H took a catheter and shoved it up into my uterine lining and took a chunk out of a specific spot.  He then felt the need to show me the blood and tissue he removed - could have done without that!  But the point of the procedure is that when we go to transfer Frosty he'll be able to see the spot where he took the tissue and will aim to deposit him/her right into that little indentation which will hopefully help Frosty implant and burrow in  Fingers crossed.

I go in tomorrow for an U/S to check and see how my lining is looking.  The only thing I've been taking to help with it is IM injections of estrodel every three days.  It doesn't seem like much.  I thought I would be on suppositories as well but I'm not.  Hopefully my lining is looking good and we can continue moving forward.

Although my blog is anonymous there are family and friends that I've shared the URL with.  Because of that I won't be posting my exact transfer or beta dates.  When I miscarried in March everyone who knew that we were pregnant and also knows me in real life, knew the date and time of the 7 weeks ultrasound.  I feel so blessed to have so many people who love us, support us, and are cheering us on.  However when we got the bad news I was obviously hit pretty hard and all of the calls and text messages just overwhelmed me even more.  I think it would have been easier if I could have had time to process the news and then informed people when I was more settled.  So that's my game plan moving forward with this transfer.

I hope no one feels like I"m trying to shut them out or that I don't appreciate each and every one of you who follows this blogs, sends positive thoughts and prayers, or reaches out to me to tell me that they are thinking of me.  IT MEANS SO MUCH TO ME!  I'm so grateful for all of my amazing friends and family and it's what gives me the strength to keep trying.  So from the bottom of my heart thank you all so much.  As for the wonderful people that I've never met but have connected with through this amazing community your ability to understand exactly what we are going through has been a light in the darkest tunnel for me.  Feeling like we aren't alone on this journey has made it more bearable.  I appreciate all of you so much!